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The European rare disorder ecosystem – Norway ready or not?
A webinar about ERNs and Norway’s role on the international arena of rare disorders.

In this webinar we are putting the spotlight on collaboration for rare disorders with a special focus on European Reference networks (ERN) and Norway’s role. Norway is already part of a few ERNs, but many more Norwegian health care providers are on their way into more networks. However, there are challenges ahead of us and we need to work together to solve them. One critical question is the accessibility of Clinical Patient Management System (CPMS) which currently is unavailable from Norwegian hospitals. In this webinar we will hear from participants with different experiences and perspectives on the ERNs. We hope you will join in and bring your questions to the speakers and to the panel at the end of the webinar. Hopefully we will be one step further towards contributing to well-functioning ERNs for the benefit of the rare disease population in Norway and Europe.

The webinar will take place on June 18th 2020, 10am-2pm. CEST time.

It will be held entirely in English, but we can help translate questions to the speakers.

Please find complete program by following this link: http://www.orpha.net/national/NO-NO/index/sjeldne-sykdommer-i-europa-og-internasjonalt/

If you have questions about the program, please contact Lene Martinsen (lenma2@ous-hf.no) or Rebecca Tvedt Skarberg (retska@ous-hf.no).

For technical questions please contact Christoffer Hals (chh@frambu.no)

Jun 18, 2021 10:00 AM in Oslo

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